Today she’ll be contacting the doctor that she’ll be working with.
All of this was raised in the past 17 hours. My deepest thanks and love go out to each and every person who has donated. I can hardly wait to see my closest friend finally out of pain. <3
I’m about to head to bed [I’m still so wired and still getting so many messages, but it’s 5:30am], but I wanted to make one last post first.
There’s a couple of people here on tumblr who are skeptical and seem rather angry about it, and it’s fine. Man, you should be skeptical. A total stranger is getting sent money without evidence? Yeah, you should be skeptical! So I’ll try to answer some of the inquiries I’ve seen.
I am not saying, nor have I ever said that I was dying from endometriosis. It’s the cysts and tumors that have completely destroyed my ovaries, are crushing my uterus, and are crushing and damaging my intestines [causing blockages and internal bleeding] that are killing me.
You are right, I know jack shit about endo. Hell, I didn’t even know it existed until two weeks ago. I have suffered from this pain since my adolescence and have been misdiagnosed time and time again by many, many different doctors. That’s the story of many women, apparently. Because it was affecting my digestive system, most doctors looked into IBS or Krohn’s or UC. Several doctors went as far as to assume that it was mental, giving me antidepressants or trying to send me to therapy. My all time favorite were the doctors who assumed I was lying to either get pain meds or get attention or something. Always a fun blow to the spirit. The doctor I saw a few weeks ago after spending a night in the Emergency Room was the first doctor to look into endo. I got a CT scan in the ER which first showed signs of cysts. Then I got an ultrasound that found several cysts and tumors, and that they were far larger than expected and just wrecking my shit. I have not, in fact, had the laparoscopy done to finalize the endo diagnosis [despite how blatantly clear to my doctors it is that I have it] because I can’t afford it yet.
But I reiterate, the endo isn’t the problem, it’s the catalyst. It’s the match that started the blaze, but it’s not the actual fire destroying everything.
I have a few messages in my askbox and there are some posts in my tracked tags saying “show me one case of this being fatal!” or “you are lying, this isn’t fatal” etc etc. I haven’t researched anything, so I can’t spout out any details to you. But I can point you towards Kim Rhodes, the amazingly talented actress who has had multiple surgeries for exactly this and almost died. Or the several dozen women in my askbox who suffer from endo and have their own similar near death stories. The three girls who got cancer from it.
I’m happy that neither your life nor the lives of anyone you know have been put in jeopardy from this, I truly am. And it IS a sucky, horribly painful disease at any stage. But this is what is happening to me and I never said this is what endo is like; it’s entirely up to you if you want to believe me or not. I don’t have physical proof lying around in my home because this was never supposed to happen. I didn’t think to ask my doctor for a copy of my paperwork “just in case I have to prove myself to the internet some day”. All I have is my word and the word of the many people who know me here and have stuck by me through this. They believe me and have watched me in pain long enough to know this is real, so they started all of this.
And I want to make this clear. This was never my idea. In fact, I was all but forced kicking and screaming into this because I hate to ask for help and money. But it’s happening now and I am so moved and touched by just how many people care and want to help in any way they can.
Tonight was beautiful. Tonight the internet made something that only happens in movies a reality, and I’m just still in total shock. I keep randomly crying and I have been shaking this whole time. I just. It is impossible for me to thank you all enough. It started off as an SPN family thing, and then it just branched out to all of tumblr, and is now on twitter and even facebook and I just cannot even wrap my brain around it.
Okay, I need to stop, I need to find my way to my bed before I just pass out here. But really, guys. Thank you all so much for this overwhelming support. I have SO many messages filled with love and kindness and I just… yeah, you get the picture. Thank you, thank you, thank you.
I understand being skeptical, too. It’s not like this was planned out in advance. And for something NOT planned and with NO proof this is a miracle.
So I understand being skeptical. I do. But it’s difficult to not let my emotions get in the way. I’ve been close to Sashi for years. I’ve watched her health deteriorate from sometimes food being painful to digest/vomited back up to almost every single time it comes right back up and the pain is nearly unbearable. For the record, it turns out this is due to her tumors pushing on her internal organs.
I just wrote a massive sentence about her deteriorating health and deleted it. I’ve watched it happen. I’ve watched a woman I love, the woman I respect, my best friend in every sense of the term, deteriorate to the point that keeping down liquids is considered an accomplishment. I’ve watched my best friend creep closer and closer to death. And I’ve been helpless.
I don’t know if I can really express how amazing it is to know that she has endometriosis - to know about the tumors. For years upon years (since before I knew her) *nobody* knew what was wrong with her. Sometimes it felt hopeless.
A year ago I drove her to the ER. I yelled at a doctor for the first time in my life. Sashi hadn’t held anything down beyond vitamin supplements and water for a while - over a week. I told the doctor this and he pointed at her chart and said “if that was true these results would be different.” So I yelled. I asked if he was calling us liars. And he repeated himself. I pushed and pushed to try to get them to understand how important this is and we got shoved out the door with two painkillers and a referral to maybe go see someone else.
Later on we found out he wrote things in her chart about how we lied, about how it wasn’t that bad, and specifically about how we kept laughing. Yes. Laughing. That’s what I fucking do I make people laugh. That’s what I’m good at. I’m good at making people laugh. And I’m REALLY good at making Sashi laugh. So when her world is crashing down around her and she’s laying on an ER bed at 2am damn straight I’m going to do everything in my power to make her laugh. If I can ease the pain or ease her mind just a little bit then I’m doing the right thing. But no. Because we weren’t sobbing and quiet clearly we’re lying. She isn’t allowed to have a good attitude about her debilitation medical condition.
Okay. I sidetracked. This post is personal, it’s not meant to prove anything to anyone, it’s just meant to vent. I’m trying to be understanding with the haters. I really am. But when I’ve experienced as much of her disease as I have, when I’ve watched someone I can’t bare to think of loosing slipping away, I get angry. I want to scream at them about her chronic pain, about the hopelessness, about the doctors who constantly treated her (and me, or her roommate) like we were there for drugs. About the sicknesses when we traveled, about planning our trips (pacing, location, hotel, food, transportation) around her deteriorating health. And then just crossing our fingers and hoping she gets to come out of the hotel room long enough to have some fun.
And to finally have a ray of hope. Not even a ray. A whole fucking sun of hope. WE KNOW WHAT’S WRONG WITH HER! Every time I stop and think about this the sobbing starts again. We KNOW she has tumors. We KNOW they’re pushing on her organs. We KNOW why there’s internal bleeding. And we KNOW it will STOP when she gets the tumors and her ovaries removed.
Thanks to the power of the internet this is going to be possible. So I get a little huffy when someone tries to rain on this amazing parade. And I wanted to vent. Thank you for reading.
I’ll be vlogging tonight and covering what’s going on in video form. Maybe blogging more I don’t know. I just woke up and I need to go for my Wednesday run. Which I think I might have to wait until later to do. I’m shaking too hard - I need food and water and to just sit here for an hour.
I love you, internet.
There are no words for the support I’ve seen for Sashi tonight. No words. I can’t right now. There are hardly any breaks in the tears. If things keep going the way they are right now she’ll be able to get the surgery that will save her life. I can’t thank everyone enough and now’s not the right time to try. Please keep it up.
It took me forever to get this video up on the internet because tumblr gave zero shits about letting it work and then youtube took it’s sweet time, so the numbers and everything I say during my hysterical sobs aren’t even close to accurate anymore.
Guys. I am overwhelmed. At this exact moment, my paypal account has over 7k in it and I am exchanging emails with KIM FREAKING RHODES about her doctor and theres a tumblr account dedicated to this and other paypal accounts are collection donations and people are doing commissions akjshdkajh I just…. I can’t stop crying. I don’t even know what to say except a pathetic thank you amongst my tears.
Okay. I’m sure you’ve seen it already, but just so it’s attached to everything, my paypal email is [REMOVED] if you want to help. I understand if you can’t. omg I didn’t even want to ask for money in the first place and now this is happening aksjghdgka
Okay. It’s time to get Sashi the surgery she needs. The internet is already out in full force and over $8,000 has been raised in the past few hours. Kim Rhodes is working with her now. Kim’s given Sashi the contact information for a doctor possibly willing to work with her on the money she’s able to raise. He’s located near where I am in Southern California right now so I can help her out with anything she needs for arrangements. The only thing she’ll have to worry about is getting better. Enough money has been raised right now to pay off most of the emergency bills she’s already accrued in the past few weeks.
The operation she needs is an oophorectomy. She has multiple orange-sized cysts on her ovaries and needs both of her ovaries removed.
Any amount of money helps. This is her legit PayPal email and I can vouch for her.
Please reblog this, tweet this, Facebook this - anything. Please help save my best friend.
EDIT: UPDATE, TUESDAY NIGHT: CURRENT AMOUNT RAISED IS $19,500 AND COUNTING. Let’s make this happen. I’ll update again tomorrow.
UPDATE, WEDNESDAY MORNING: CURRENT AMOUNT RAISE IS $26,800 AND COUNTING.
UPDATE: FUNDRAISING COMPLETE!
I’m still fairly out of it from the dosage of morphine they gave me so I’m just gonna make this short. Basically worst day of my life, there aren’t words to describe how much pain I was in. And I missed watching Sherlock. After a few hours in the hospital and their first dosage of pain meds doing nothing and then finding blood in my urine, they gave me a huge shot of morphine [the nurse was like DDDD: THIS IS A LOT] and sent me over for a CT scan. I have a “big old ovarian cyst” the doctor so lovingly described it, big enough that surgery may be required. Today I’ll be calling another doctor about a colonoscopy and discussing surgery.
Meanwhile, lots of codeine!
sljfajfljasdlfjsdljf THIS was all I cared about yesterday. D: I didn’t want to blog about it before she did since I thought that would be rude like HEY INTERNET BTW MY BFF’S HEALTH PROBLEMS.
I spent most of the day yesterday texting back and forth between her and her roommate (he’s being amazing and giving me updates so I don’t have to constantly bother her with WUT U DOING NOW WUT NOW WUT NOW). I mostly laid in bed sobbing and texting. I can’t really express how much I love Sashi and the fact that she left to go to the emergency room in the middle of the new Sherlock episode meant it was bad.
Chris tried to comfort me as best he could and actually bought me ice cream because I was so upset. I sniffled and ate my ice cream. I am apparently a five year old girl. (He also buys me frozen yogurt if I agree to go to doctor appointments.)
I shouldn’t be happy that Sashi has a giant cyst that might need to be operated on but after years of “lul dunno have some pain killers” to actually see something that’s wrong made me weep from joy. And when I found out that she’s actually going to be getting a conlonoscopy I shouted IRL “YES! COLONOSCOPY!” I’m overjoyed my best friend in the entire world is going to have a camera put in her butt.
My birthday is next Sunday and a CT scan and colonoscopy for Sashi is the best present I could have possibly gotten. <3
This is the most fucked up tradition I have - every time I go to a hospital’s emergency room, I take a picture of me wearing one of the masks. This time I was too busy sobbing, so I took the picture once I got home.
^^^ This is Sashi, my best friend in the entire world. The best friend I’ve ever had. The best friend I could ever have. Tonight she went to the ER. This happens more often than is it should. She has the most amazing, upbeat attitude in the WORLD despite the chronic pain she deals with.
I’m terrified that I’ll lose her one day.
Sometimes I get to be the person who drives her to the ER, though~ This is a picture of us from earlier this year:
Sashi is coming over for a little while with Bamboooooo. <3 <3 <3
Merry Christmas everyone, from me and my baby.
This puppy belongs to my BFF. I love him SO much. He represents everything I adore about having a dog especially the ridiculously amazing outfits. JUST LOOK AT THIS. So fancy. :3
He sits on my lap while I game and whenever he’s around me and I’m sad he makes the cutest puppy faces. ILU MR BAMBOO <3 <3 <3